Thursday, August 27, 2009
Wednesday, August 26, 2009
Nicholas's school was on the news the past 3 days because of swine flu. A student has type A influenza which, in 98% of cases means they have the H1N1 virus. Great. Luckily, the child was diagnosed over the weekend and hasn't been to school this week. The school has been disinfected. I had to go to a meeting at the school tonight and when I walked in, my first thought was, "is there a swimming pool in this building?" Ahhhhh. Cleaning chemicals. And they installed hand sanitizer stations. Good.
At Lexi's last pediatrician appt., Dr. M strongly advised us to all get the flu shot and, when it's available, the H1N1 vaccine. Since Alexis can't get the vaccinations until 6 months old, it's important that everyone around her get the shots. Yuck. I'm so lucky that I have such healthy kids. Never had the flu shots, never had more than the 24 hour bug. But all the news coverage and the talk with my doctor make it sound soooooo scary--especially when you have an infant at home--an infant with a heart condition. Guess we'll be getting the vaccines this year. I'm already planning in my head what I'll do for the boys after their injections. Sucker? Ice cream? Toys? A new pony?
We had our first OT session on Thursday and our first PT session on Tuesday. So far so good. Except that my sweet little angel baby cried and fussed and was mad the whole time. Murphy's Law at work. They assessed her muscle tone, did some exercises with her, gave me suggestions of things to do with her like tummy time, encourage the pacifier, etc. The most interesting thing I learned was when the PT said, "she does have low muscle tone, but she's still really strong!" I had always thought of muscle tone and strength as being the same thing. Nope. You can tell Alexis has low muscle tone because of how her arms and legs fall to the sides when she's laying on her back, but you can also tell that she's very strong when she grasps on to things and kicks out her legs. Her strength will help her a lot with dealing with the low muscle tone.
I'm excited that she is finally reaching for things. She's reached for a few things before but I could never tell if it was just coincidental that she was stretching her arm out in the direction of something. But now it's more frequent and even PT would say, "that was an intentional grasp!" Yeah. At least in all her crying and fussing during the PT session, she still impressed them. PT and OT are now scheduled to take place on alternating Thursdays.
Friday, August 21, 2009
"Armstrong, Beth, son. Patron saint...Cecilia."
"Rutledge, Carrie, twins. Patron saint...give her Gerard. He's used to profanity."
Finally, He passes a name to an angel and smiles. "Give her a child with a disability."
The angel is curious. "Why this one God? She's so happy."
"Exactly. Could I give a child with a disability a mother who doesn't know laughter? That would be cruel."
"But does she have patience?" asks the angel.
"I don't want her to have too much patience or she'll drown in a sea of self pity and despair. Once the shock and resentment wear off, she'll handle it. I watched her today, she has that sense of self and independence so rare and so necessary in a mother. You see, the child I'm going to give her has his own world. She has to make him live in her world, and that's not going to be easy."
"But Lord, I don't think she believes in you."
God smiles. "No matter, I can fix that. This one is perfect. She has just enough selfishness."
The angel gasps. "Selfishness, is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes she is a woman whom I will bless with a child less than perfect. She doesn't realize it yet but she is to be envied."
"She will never take for granted a spoken word. She will never consider a step ordinary. When her child says 'Mommy' for the first time, she will be witness to a miracle and know it. When she describes a tree or sunset to her child, she will see it as few people see my creations."
"I will permit her to see clearly the things I see...ignorance, cruelty, prejudice... and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is there by my side."
"And what about her patron saint?" asks the angel, his pen poised mid air.
God smiles. "A mirror will suffice."
Tuesday, August 18, 2009
It's amazing what has been invented just since my 4 year old was born.
When Alexis was discharged from the hospital, not only did they send us home with formula, but we were given these single serving packets of formula. I already have the divided container that I can store premeasured amounts to carry in my diaper bag, but it's nice to have these little packets of formula as a convenient emergency supply. I was recently told by someone that these aren't new, but I've never had a baby on Enfamil, so these handy packets were new to me.
Monday, August 17, 2009
Today I talked to our new First Steps OT. She will come for our first OT session on Thursday at 9:30 and it will be our standing appointment every other week. The calendar is filling up fast. Preschool starts September 9 which will be M,W,F mornings. Can't wait to see how we fit in PT because apparently they had to beg and plead for her to take us on since she was already full.
Nicholas started his second week of kindergarten today. I'm so glad he's enjoying himself and is happy to tell me about his day. On every paper he has brought home so far (tracing letters, cutting lines) he has decorated with a drawing of a Transformer. Monster trucks are out. Transformers are IN. Until next week anyway.
Friday, August 14, 2009
I turned in my resignation to CICOA. I had heard rumors that there were going to be some changes in the job description and then early this week received an e-mail informing us of our new responsibilities. I had every intention of going back to work sometime after Alexis had totally recovered from her heart surgery. It's nice having a little extra cash coming in and the job was the most flexible in the world. Unfortunately, they gave us more responsibility, less flexibility, and not nearly enough pay for the extra work. I'm a bit bummed, but at the same time, I was still having a hard time picturing myself leaving Alexis for a full day at a time. I'm just very grateful that my husband has a job that allows me the opportunity to be home with my children.